David and I got into New Orleans late last night. We slept in a little today and are going to take the day to rest and digest the information from yesterday. I was very prepared for the appointment with Dr. McClain and heard what I was expecting to hear. I have started writing the details (it is like a journal - very long) but won't publish until I have a chance to talk to the kids. We plan to be home Saturday evening. Expect the post to publish Saturday night. I know you all are eager, please understand, this is something I didn't think about until now.
Just heard from Kathleen, my LCH-CNS pen pall. She is not doing well today and may not be able to meet with us after-all. Please pray for her. Love you all!
"LCH-CNS" - As I embark on a journey... (too dramatic) Here I go again...rare medical problems that... (no, I don't like that either) My attempt at being efficient in communicating with my family and friends - updates on my health - Histiocytosis. (OK, boring but to the point)
Friday, May 21, 2010
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Short Cuts to My Posts
- Between Treatments
- Details will come
- Diary Stuff
- dose
- Dr. Appointments
- E.R.
- Endoscopy
- histiocytosis
- Houston Dr. Visit
- I promise
- Interview - Dr. #1
- LCH-CNS
- Lumbar Puncture (Spinal Tap)
- MD Anderson - first consult
- MRI - Spine and Brain
- MRI. Check-up
- Port
- Post Treatments
- Round one
- School is out - MRI tomorrow
- Tests
- Thoughts and Fears
- treatment plan on hold
- Treatments
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