We were there a long time and I got a little tired and blurry eyed from some of the meds but that didn't stop me from talking to Nurse Leslie.
"LCH-CNS" - As I embark on a journey... (too dramatic) Here I go again...rare medical problems that... (no, I don't like that either) My attempt at being efficient in communicating with my family and friends - updates on my health - Histiocytosis. (OK, boring but to the point)
Monday, July 26, 2010
Day 1 - Cycle 1
Waking up this morning, I had some butterflies, after all, what is a girl to wear to her first day of Chemo? Thankfully, Tabby helped me pick out my clothes and the rest of the day went well. The best news is that my first day of Chemo was very good.
How can it not be when you get served a cookie in the waiting room? I have thoughtfully packed on a few extra pounds this summer so, I am ready for the loss of appetite and nausea. BRING IT ON! Yes, it was a pleasant experience and I am now home, playing cards with Tabby as I write this. Aunt Kay met us for a slice of pizza this morning, took me to MD Anderson and brought me the last prayer shawl my Maw Maw made before she died.
I kept that close by and I could feel all the positive thoughts and prayers coming my way from my friends and family today. It must have worked, because I felt so good all day.
We were there a long time and I got a little tired and blurry eyed from some of the meds but that didn't stop me from talking to Nurse Leslie.
We are doing an IV this week but planning the port before the next cycle. The nausea medicine really made me feel the foggiest. Other than that, I could smell and taste the saline but when it came to the Cytarabine, "nothing". No taste, no smell, no nausea. But, I felt a little groggy...
hey look, my very own private TV. This is great! Who cares if I am groggy? Live is good! Ok, I am still in the honeymoon phase but I think I was prepared for a rockier start. I can't complain. I am alert, I feel fine, was able to walk to the car, eat dinner, take out the trash and the recycle bins! How 'bout that? My temperature is 98.4 and knock on wood, I feel fine. Keep those prayers, thoughts, and what ever it is you're doing, coming this way!
We were there a long time and I got a little tired and blurry eyed from some of the meds but that didn't stop me from talking to Nurse Leslie.
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Short Cuts to My Posts
- Between Treatments
- Details will come
- Diary Stuff
- dose
- Dr. Appointments
- E.R.
- Endoscopy
- histiocytosis
- Houston Dr. Visit
- I promise
- Interview - Dr. #1
- LCH-CNS
- Lumbar Puncture (Spinal Tap)
- MD Anderson - first consult
- MRI - Spine and Brain
- MRI. Check-up
- Port
- Post Treatments
- Round one
- School is out - MRI tomorrow
- Tests
- Thoughts and Fears
- treatment plan on hold
- Treatments
glad it was a good start. If anyone can keep a great attitude about it all, that'd be YOU!!
ReplyDeletexo Lauren