First of all, I am sorry for this long lapse without a report. I was in awful pain for 3 days after my Port Placement. Couldn't do anything!!! I had to sleep sitting up on the couch because it hurt so bad in all positions. This last week has also been a long road of healing on top of pre-planning for school. I did OK each day until about 3 or 4 PM and then I crashed on the couch for a couple of hours. I was so beat by Tuesday night, I was worried about the whole year ahead. I started taking more vitamins and actually felt better on Friday.
David and the kids helped me set up some things in my studio on the main campus. We worked so hard on both campuses that we left the house a wreck. What a way to start back to school. The yard hasn't been mowed in 2 weeks, we are behind on our laundry, dishes and house cleaning. Oh, yea! This is the way to start my second round of chemo, too! "Stop the tram! I'm parked in Sleepy?" OK, I don't think that came off as funny in writing as it did in my head. For those of you who didn't get it, I was making fun of "Stop the World, I Want to Get Off" - Orlando (Disney) style. Still not funny, I know. AHHH, look at the time! I have to wake up at 5 AM, what am I doing up?
Here we go! This week will be the real test if I can do this or not. Don't expect daily posts. After last week, I am planning to sleep during my treatment on Monday. Then Tuesday, I have a friend Michelle B. coming to sit with me so we can laugh it up in the Chemo Lounge! I'll probably sleep again on Wednesday - who knows.
G' Nite!
"LCH-CNS" - As I embark on a journey... (too dramatic) Here I go again...rare medical problems that... (no, I don't like that either) My attempt at being efficient in communicating with my family and friends - updates on my health - Histiocytosis. (OK, boring but to the point)
Sunday, August 22, 2010
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Short Cuts to My Posts
- Between Treatments
- Details will come
- Diary Stuff
- dose
- Dr. Appointments
- E.R.
- Endoscopy
- histiocytosis
- Houston Dr. Visit
- I promise
- Interview - Dr. #1
- LCH-CNS
- Lumbar Puncture (Spinal Tap)
- MD Anderson - first consult
- MRI - Spine and Brain
- MRI. Check-up
- Port
- Post Treatments
- Round one
- School is out - MRI tomorrow
- Tests
- Thoughts and Fears
- treatment plan on hold
- Treatments
Stay strong. Get sleep.
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