First of all, I can't believe it! Time is going so fast, I am almost half way done! (Thank Heavens!)
Once again, I am starting treatment with a little cold. This didn't go so well last time and it worries me a bit. I hope for the best and will try to stay positive. But, I am so tiered I ache. Physically, my eyes are really tired and fluctuate between dry and watery, my muscles hurt with the smallest activities and I can't get everything done that I want to. I took a long nap Saturday and still got 12 hours of sleep Saturday night. I am about to go to bed now and hope I will wake up refreshed. (ha, that sorta makes me laugh. Like I would really feel "refreshed".) OK, I realize this is coming off more negative than usual but I promised myself this blog would be truthful, and here it is....my truth.
Sunday morning, during our church service, I was inspired by the minister's story about a mountain climbing accident in his teens...a fall from 50 feet that fractured his head and crushed his legs. He was told he would never walk again, yet here he was standing before us. "I can do this." I thought to myself. "One day, this will all be behind me and I will be fine. Trust in God, Misty...keep the faith." But, for some reason these words make me tear up. Even now as I write this. I don't know why. Maybe my "tired" is more than physical. Maybe it is also emotional. Can I make it through this? Can I really see myself healed and re-building my strength and endurance? On a good day, yes! But, they all aren't good days. As my mom used to say, "We have to have some bad days if we are going to recognise and appreciate the bad ones."
We had a busy weekend! The kids had lots of activities. Tabby performed a duo "Hard Knock Life" and did a great job. I'll upload it later. The boys had band stuff then Sunday was full of things...I have some cute pictures I'll share later, as well.
For now, I just wanted to say, "Here I go again! Wish me luck!"
Love you all!
Misty
"LCH-CNS" - As I embark on a journey... (too dramatic) Here I go again...rare medical problems that... (no, I don't like that either) My attempt at being efficient in communicating with my family and friends - updates on my health - Histiocytosis. (OK, boring but to the point)
Subscribe to:
Post Comments (Atom)
Short Cuts to My Posts
- Between Treatments
- Details will come
- Diary Stuff
- dose
- Dr. Appointments
- E.R.
- Endoscopy
- histiocytosis
- Houston Dr. Visit
- I promise
- Interview - Dr. #1
- LCH-CNS
- Lumbar Puncture (Spinal Tap)
- MD Anderson - first consult
- MRI - Spine and Brain
- MRI. Check-up
- Port
- Post Treatments
- Round one
- School is out - MRI tomorrow
- Tests
- Thoughts and Fears
- treatment plan on hold
- Treatments
"This will be easy on Misty...She will handle it well...She will be able to keep working...and it will cure her!
ReplyDelete-Erik
I did the vinblast/pred for 7 months total and you will get your energy back. I just takes longer than you want it to. Good luck. So far 1 year in remission
ReplyDeleteJeannie
Keep hanging in there, you will make it through this, and we need you and your blog...WE LOVE IT!!! Any positive changes with the head yet? My husbands cleared after round six of cytarabine. Lots of rest, take care
ReplyDeleteBelinda (in Aus!)
Are you getting the Neulasta shot? That really helps with the energy!
ReplyDeleteNot getting the Neulasta shot. Haven't heard about it. I will ask though. Thank You!
ReplyDeleteMisty, I understand. My faith is tested too and I get so angry sometimes all I can do is cry. I am thankful you are getting re-acquainted with you right arm. I think of you often and love you very much. I look forward to seeing you next month.
ReplyDeleteMarcia